It’s been three weeks since I was advised to reconsider
writing this blog. I do take the advice that I have been given seriously, god
knows I have relied on the advice of others to get me through the last few
months. Who have been my advisors you may ask. Well it has been a range of
people from Doctors, counselor, nurses, and peer support group members. I know
their advice is out of concern for my well-being, that through their experience
it seems like the best thing for me to do. Why do I have this feeling that I am
being told to build a new closet to hide myself in (see chapter 4)? As I said in
chapter 4 and will say now, I have no use for closets except for items of clothing.
The liberation I felt when I came out as a gay man was profound, it gave me
strength and confidence so why step backwards and hide ‘me’ again. I realise
that this closet is different, my first closet growing up could be decorated
with colour, somewhere that I could hide and be myself and find some semblance
of joy while I developed as a gay youth, if even for a short time. This new
closet is black, no light is allowed in, it’s a room full of despair, darkness
and is joyless, who in their right mind could think this was an appropriate
response to any situation or a healthy place to be. In saying this, I have
already suffered the ignorance of fools because I stepped out of this dank hole
and exposed myself.
FUCK IT!
I’ve made a decision, it may turn out to be the wrong one
but I feel within myself that it is the right one for me. And this is for me, I am perfectly
comfortable shutting people out of my life if they are not at least neutral if
not positive in their support. I gained a lot of strength by coming out as gay
when I was young, I developed a thick skin and a shield that I used to repel
any negativity that was thrown my way. I plan on using that strength to deal
with anything that heads my way from what I am about to talk about, I am
getting used to abandonment.
So I return to the doctor’s surgery back on 12th
March 2018. He is still holding my arm as he looks at his computer screen
checking my blood results.
“Why did we do these test?” he asks.
Now this may seem strange, you would think that a medical
practitioner would know why he requested tests on a patient but this was his
method of ensuring that his patients understood the purpose of the tests. He
expected his patents to respond with at least some understanding of what he was
looking for.
“Well,” I responded, “I had that flu a couple of weeks ago
that was really debilitating and I just wanted to check everything out to make
sure everything was okay.”
“Okay,” he said as he turned back towards me, maintaining
his grip on my arm he looked me in the eye and said.
“I’m afraid your results are back and you are HIV positive.”
I know he was still talking to me because I could still see
his lips moving. My hearing shut down as if to shield me from what I had just
heard, then I could no longer feel his hand on mine as the rest of my senses
began to turn off. My mind had stopped at the mention of HIV and was too busy
trying to work out how to digest this news and was shutting out all other
activity while it tried to process the news. This must be what it is like at
the moment of death, everything shutting down all sensations dropping away with
just a glimmer of life around you visible in the periphery. I remember seeing
my doctor’s lips moving so I know he was still talking to me but I couldn’t
hear what he was saying. He must have asked a question and not received a
response before he realised that I was only physically in the room with him, he
stopped talking but kept his hand on mine. We sat in silence until my mind
started to re-boot and come back online. I pulled my hand from under his,
rested them on my falling forehead, closed my eyes and took a few deep breaths.
“You need to contact any sexual partners so they can get
tested,” was the first thing I can remember him saying as I began to reanimate.
He was to say this to me another 3 times during the remainder of our
conversation and I really felt like screaming at him that I understood and knew
what I had to do. He offered to fax a referral across to the Princess Alexandra
Hospital so that they could arrange to see me and discuss treatment options but
I wasn’t waiting for a phone call. I took the referral letter and decided I
would present to the PA the next day and move things along.
All I could think about was Mark, a friend from Sydney. He
was the flat mate of an old family friend who provided me with somewhere to
sleep when I first moved to Sydney from Brisbane. I lived on their couch for a
couple of months while I looked for work and then saved enough money to find a
place of my own. Mark was someone that I really admired, it wasn’t a crush so
much as hero worship. I was inspired by his self-confidence, the way that he had
incorporated his gayness into his life. We were never close friends but
comfortable enough to chat if we happened to catch up. Which is why I was
surprised when I got an invitation to meet him for a drink a few months after I
had moved out of his apartment. We met at the Albury, a popular gay bar in the
centre of Oxford Street, a bar styled like any local pub in Australia with the
long bar on which to rest an arm over a beer. We sat and talked about what we
were up to for a while before he paused to tell me that he was HIV positive. My
first thought was about the latest treatment options.
“Why are you telling me?” I asked
“Because we lived together I just needed to tell you, He
replied.
“Thanks, but there’s no risk for me, you didn’t have to tell
me,” I replied, which was true, sharing a toilet or a mug is never going to be
a transmission source, I knew I had nothing to worry about. ”How are you going?”
I asked, “What treatment are you going to take?”
We chatted about his future for a while before I leaned over
and gave him a hug at which point it became too much for him and I could feel
the emotions rising. “Thank you, you’re the first person who has asked me about
me,” he said, “everyone has been more concerned about themselves.”
“I’m fine, you’re the one that needs a hug at the moment, if
you need anything let me know.”
We sat and finished our beers before he had to go and meet
someone else to have the same conversation again and again.
He never did need anything from me, which was fine I was
glad that I was able to make what was a difficult conversation easier. This was
all I could think of as I left the doctor’s surgery that day, how was I going
to tell the guys I had been with. First thing first I had to call work and tell
them I wouldn’t be in the next day. The conversation was awkward, I couldn’t
name the reason and when I explained that I had to see a specialist the next
day and was asked if it was serious I could only answer “yes”. I was in no
place to name the problem that I was facing and in no state of mind to discuss
it.
That taken care of I then spent the rest of the night with
two conversations rolling around in my head, one that I would use when
contacting sexual partners and one for work. I couldn’t eat, couldn’t sleep,
every time I’d start to fall asleep the speech I would need to have with a
growing number of guys would start to roll around in my head. I decided I needed
to construct a precise and simple statement which stated my new reality and
requested him to arrange a test for himself. I knew that I couldn’t have a long
drawn out talk over and over again and needed to pass on the information
quickly like pulling off a Band-Aid because my list was now in double figures
and I didn’t know how much strength I had to keep repeating the same
conversation. The next morning after a sleepless night I had a set script in my
head that I was going to use. Some of the guys I had to contact were only
available through text messaging so I began with them although I had to send
each message separately as I couldn’t group text and make each aware of the
other guys on the list. It simply said.
“Hi, I’ve just been advised by my doctor that I am HIV
positive, please arrange to have a test to make sure that you are okay.”
I then began making phone calls to repeat the same statement
to the next group of guys, the conversations were brief, I was having enough
trouble vocalising what I had to say that any further conversation was too
difficult to deal with. The response was as could only be expected, fear,
panic, expletives abounded and I felt responsible for placing all these guys
into this situation, my guilt grew with each conversation. As soon as I
finished making all the calls that I had to my phone began to ring. Guys that
had received a text began to call in a state of panic, but there was nothing I
could say except to repeat my message,” get tested then you’ll know, there’s
nothing to worry about until then.”
This was to become my night mare for the
next two weeks. Every morning on the way to work I would receive a call from
someone who was panicking over a possible result and all I could do was try and
reassure them and try and calm their anxiety. By the time I walked into work I
was drained, I was still trying to come to terms with my situation but was
spending my mornings counseling other guys who were yet to know what their
status was and I was not coping. I would struggle through my day occasionally
hiding in the bathrooms to cry and let out some of the emotions that were
building up within me but as soon as I left work it would begin to build again.
The moment I would arrive home the phone would ring and another group of guys
would begin to ring to express their concern over their safety. On and on this
went, day after day, week after week, and the feeling that I was responsible
for the well-being of all these guys forced me to try and be strong and
supportive of them while they waited for their results.
“Why?” you might ask.
We all played
with each other at some point, someone, possibly one of the guys I contacted
was the source of my infection but still I felt that it was my responsibility,
to put aside my distress, my shock, my panic and focus on getting them through
their concern. I know I should have been focusing on myself but I felt that I
couldn’t abandon them while they were being checked out, if any came back
positive I would have to be there for them.
A few days after contacting everyone I began to receive a
new message, results started to come in.
“I’m clear,” I was hearing and I have to say that this was a
great weight off my mind, I didn’t want to feel responsible for putting anyone
else into the position I was in, “Fuck it gave me a fright though,” they’d
continue.
Slowly I began to receive a mix of calls, guys still in a
panic about upcoming result and guys who had been given the all clear. All I
could tell those in a panic was that everyone so far was okay so not to be
concerned until their results were in. As I said, this continued for a couple
of weeks but by the end the 18 or 19 guys that I contacted informed me that
they were all clear. There were a couple who never got in touch after my
initial request to be tested but I felt that I had been up front and honest
with them so there was nothing else I could do, I hope they, like everyone else
were okay. Although I do wonder why I never heard anything and I hope they
didn’t knowingly infect me for some reason. I’ll never know.
These conversations confirming a negative status began a
whole new issue for me. As I was being advised that everyone was okay I began
to notice that the conversations were one sided, everyone was expressing how
scared they had been, how happy they were with their result and how they had
been panicking for the last week. No-one
had yet asked me how I was, did I need anything, and was I okay? Then it was
made blatantly obvious why no-one had asked. Conversations began to end with a
statement like, “Don’t contact me again!” or after the call I discovered my
number was either blocked or I was being un-friended on social media. I was
being deserted by my whole social group.
Two weeks after being diagnosed I
found myself alone, abandoned by everyone in my social network, everyone that I
had told my status to had decided that I was already dead and no longer worth
the time of day, crossed out of people’s lives as though I had never been
there.
The final blow came in the third week, as Easter approached
I received a text message from a friend asking “Are you going to David’s Easter
gathering, how are you getting there?”
I hadn’t heard anything about this event and really needed
to spend time with people to try and have a normal life so I texted back asking
for details. This group contained about 6 guys who I had been in touch with
over the previous couple of weeks, a group of friend I had spent a lot of time
with over the last couple of years and I thought that maintaining this group of
friends would be really helpful. When there was no reply to my text I tried
calling but couldn’t get through. I decided to call someone else in the group
to try and get details.
When I finally got in touch with someone the conversation
was brief and to the point.
“Look, your name was part of a group list and when Jay sent
out that text he forgot that your name was on it,” He stated, “You’re not
invited.” At which point he hung up.
You know how there tends to be a major group of friend that
you see all the time then smaller groups or individuals who you might catch up
with from time to time. Well this was my major group, the bulk of my closest
friend. I had already been shunned by those individuals and smaller groups and
now my main social group had walked away. I spent Good Friday deleting names
from my address book and as it quickly emptying.
I’d never felt more alone, more despised, more worthless.
What a miserable fucking story right. Why would I want to
write about that? Well the answer is simple, I don’t want to forget. I don’t
want to forget the way I was treated by my peers, I don’t want to forget the
way it made me feel.
The way I was treated and shunned had, and is still having a major effect on how
I see myself. I can feel myself closing down, I began to shrink away
from the world around me trying to hide from everyone and everything. I became
apologetic over anything I did. I began to convince myself that it was all my
fault anyway, that I was only getting treated the way I deserved to be treated.
I might as well get used to being alone, that quiet guy that doesn’t say much
but kept to himself because I didn’t deserve anything more.
I was at my local supermarket picking up a few supplies
before scurrying back home to lock the doors and isolate myself as I felt I
should, when I joined the queue for the registers. I realised that standing in
front of me was one of the guys I had put in danger. What should I do? I felt
that it was wrong of me to force him to deal with someone like me so I turned
around and walked away, circling the aisles until I was sure he had gone before
heading home. I had no right to be seen by anyone, I had no right to force my
presence onto anyone, I could spoil their mood or make them feel obliged to say
something to me.
It’s now been about 8 weeks since Easter. I’m still alone
but now I have new issues to contend with. The only people I have told my
status to are those that need to know, clinical staff who are treating me, my
managers at work so that they can understand my needs if I have an issue and
those that I have slept with. I have stated receiving comments from people on
the street, usually young guys and usually in groups.
“AIDS Cunt,” is being whispered in my direction as I walk
down the street.
“Faggot,” is not uncommon.
The only way that these youths could know is if someone I
told has thought it appropriate to spread the word. At the moment it is only
verbal but I am trying to avoid any one on the street because I don’t know who
knows or how they might react. I thought everyone I told would at least respect
my privacy but obviously I was wrong and once it has been shared beyond the
group I have told I no longer can tell how far it has spread.
I honestly thought that the treatment I have suffered would
not have occurred in this day and age. I thought people would be better
informed about the issues around HIV particularly the gay guys I have been
hanging around with. I was really shocked by the aggression attached to the
rejection I have endured and now with the decision by someone to spread stories
about me with the gang youth in my local area I’m feeling really vulnerable and
panicked.
So why would I want to write about this and expose myself to
further abuse considering what I have already experienced?
I really don’t know how anyone reading this is going to
react, this might be the biggest mistake I ever make. But I started this blog
to record memories about my life not for anyone else but for me. This
experience has been the toughest I have had to endure and my journey has only
just begun. Someone, who I may never identify thought that it was fine to
expose me to a virus that I have avoided for 35 year of sexual activity. The
fact that no-one in my little black book has had a similar result shows that my
sexual practices have kept everyone safe. That can only mean one of three
things, either the person who gave this to me didn’t know their status and a
condom failure wasn’t noticed, they knew their status but there was a condom
failure they didn’t notice or I was deliberately exposed by someone who knew
their status. I really hope it wasn’t the later but I how do I discover that
and what difference could it possibly make for me now, the damage is done.
By putting this into a blog I once again expose myself to
further abandonment but so be it. I need to reassess everything in my life.
Looking back as I have been doing reminds me that I can overcome any obstacle
and that I am a survivor, I will survive this. I need to know who is for, and
who is against me so that I can discard the negative as I have been discarded
by those around me. I need to completely reevaluate and change my situation, a
new beginning on my terms because I refuse to let a virus dictate who I am or
what I can do.
To that end I am first of all moving house, a new beginning.
I need to get out of this area considering that most of the friends who
abandoned me are here but also because the reaction I am now generating when on
the street is making me concerned for my personal safety. Verbal abuse I can
ignore but this is only occurring through the day when other people are on the
street or driving by, which at least makes me feel that it won’t progress any
further. But if I have to leave the house at night and run into one of these
groups I don’t know if they will be so retrained and be satisfied in simple name
calling. I can’t move until August so I still have a couple of months to
survive here before I can move but I have already told my real estate agent
that I won’t be renewing my lease. I have put in a leave form at work so will
be taking off 4 weeks so that I can get to real estates, look at properties and
apply during business hours which I couldn’t do while working. And will have
plenty of time to get a new lease, move and clean before returning to work
with, hopefully a fresh outlook.
I wrote the above last night but now I feel like I am being
abandoned again.
I’ve been told by work that I can’t have the time off, I can
take the following month if I like. This is useless to me. I’ll have no lease,
no home, I can’t work with that. If I go to work I won’t be able to get to real
estates to inspect properties during their open house periods which are usually mid-afternoon and only weekdays. I will end up having to just take the first
place I can get to if I use sick leave to take a day off to get to an inspection
which means I won’t find a place I like but simply somewhere to live. I can’t
take anymore, I thought I had planned this out and I was finally getting to a
good place in my own head. The thought of moving into the city where I could be
close to the services that I need and hopefully to an area with a stronger gay
community where I might find new, more supportive friends had finally started
improving my mental state. Now I find myself falling back down. I’ve tried
thinking of a new plan but I’m left with few choices, I end up having to rush a
move to anywhere I get or end up on the street but I’d keep work happy with my
presence or I take the time off anyway and suffer the consequences but make the
move properly, but that could result in my sacking which means that I wouldn’t
be able to pay the rent so I’d end up on the street anyway. I could just stop taking my medication let
the virus come back and wipe out the rest of my immune system, there’s not much
left anyway and with winter coming some infection can finish the job it started
or I’ve just picked up 2 months’ supply of my medication which would be plenty
to cause liver, kidney and heart failure, this fucking thing is determined to
win anyway why not just be done with it. I work for an organization that talks
about work/life balance, paints itself as caring for its staff but it’s all talk, it doesn’t matter what you
do for them they don’t really care about you. I have to stop now, I’m getting
too upset.